Don’t you want to
change the world? Don’t you see there needs to be a change and you can make it?
I remember as a child I always thought I could change the world.
I saw so many injustices around me that I wanted to fix. I was very sensitive
and hated when people were hurt or upset. Whenever an ambulance would go by
with the sirens blaring I would start crying because I knew someone SOMEWHERE
was hurt. I did not know them or know what was wrong, the simple fact there was
a person needing an ambulance would send me to tears. It was the same with fire
trucks and even watching the news. I would be so scared and upset by the news I
was not allowed to watch it until 6th grade. (yea I know, cue
laughter) But this sensitivity that used to be ridiculed by other children is
one of the best parts of me.
You see, even now it’s hard for me to swallow the injustices
of this world. Even though I’m grown up and I know the ways of the world, the beggar
on the street corner puts a pit in my stomach every time. Children with special
needs who are mistreated can get me riled up and ready to fight for them.
Knowing anything about this beggar or child with special needs is irrelevant;
it’s an injustice, an unfair situation that must be righted….or at least
helped.
I have learned over the years that a moment of kindness for
a person in one of these situations can be astronomical. For them to have
someone to listen to their problem, just to act like they care, perhaps bring them
a warm meal or hold their hand is colossal. It gives them the thing they are missing; HOPE.
It gives them reason to persist through the moments of injustice and hope that
things will turn around.
These revelations came to light when I found an injustice I
could not ignore. It was one that was handed to me by God, handpicked, because
He knew how it would affect me. He knew I would not turn a blind eye to this
injustice and that it would keep me up nights trying to find its solution. He
also knew eventually, it would become my life’s work.
I met a little girl by the name of Megan just over 3 years
ago. She had Hurler’s syndrome and was always in the Hospital, and yet was not
getting the support she needed from local charities. Her out of state family
did not have the time or effort to fight for support for their family as well
as fight for her life. They did not
know the area, had the majority of their family in another state, and were
alone with this issue hanging over their heads. So with me being her
Developmental Therapist, and visiting her in the hospital each week, I decided
I would fight for her. I would look to find her a home where she could stay
when she was discharged, but being medically fragile (extremely sick with a
compromised immune system) there were many charities that were not safe for her
to enter. She needed space of her own, and her family could not live out of the
hospital anymore. They were getting terrible night sleeps on cots and waking up
with sickening worry whenever a machine would beep. I was appalled by the fact
there was no where equipped to handle her medical issues if she was discharged
from the hospital. She needed a charity to step up, she needed resources, and
her family needed HOPE.
I became extremely close to Megan and her family during the
year I knew them. Megan was no longer viewed as a child on my caseload, she was
my family, and her mother and grandmother treated me the same way. We fought
the system, and after a lot of failures, we decided that something needed to be
done about this. I spoke with Megan’s mother and she shared her dream to open a
nonprofit to help children like Megan one day. I knew as well as her how necessary
this kind of nonprofit would be as I had witnessed firsthand the hoops they
were put through. With a life threatening disease ailing a baby of only 19
months shouldn’t there be endless resources? Shouldn’t their family get support
from numerous charities and qualify for help whenever they need it?
Soon after our life changing conversation, Megan passed
away. Luckily she was able to find solace in a safe environment outside of the
hospital to make a few more memories with her family before that day came. Although Megan was gone, I kept in touch with
her family and could not shake all the problems that I had faced trying to find
aide for them. So one day, I decided to do something about it. I called my Mom
and said, “I have a kind of crazy idea…..I want to start a nonprofit for
children like Megan.” After my Mom swallowed this idea, along with a few sips
of wine, she said to me “You are uniquely qualified for this since you knew
her. You can do anything you want with God’s help.” So after a lot of prayer,
support from my Mom, and the support and encouragement of Megan’s family, we
decided to go down the opening a nonprofit path. People called me crazy, said
the economy was too bad, and it was impossible. People criticized every aspect
of our plan, but luckily I am a little crazy and have a lot of faith that
drives me forward.
Over two years later, a lot of paperwork submitted, and the
help of an amazing God-loving lawyer, we did it. We got approval from the IRS
that we are an official nonprofit. We have our 501c3 status and we are tax
exempt. We have a dedicated board that will work hard to bring spiritual, emotional,
and physical support to families with medically fragile children. We have
drive, vision, and God working hard to make this plan a reality, because
without Him we would have never gotten this far. It was so incredibly difficult
for us to get here, but we are here……we did it!
This is for the sensitive child who could not ignore the
injustices of the world who lives inside of me. That child grew up into a woman
who found an injustice she could not disregard. I am thankful for that sensitive
child inside of me which made me uniquely qualified for this type of mission.
Because of her, I will never forget the pain and anger I felt for Megan’s
family not getting what they deserved, and this will be my drive to help so
many families in the future. I am so thankful for a mother who told that child from
a young age, “you can do anything you want, you can change the world.” And I’m glad
that child was naïve enough to believe her, because
now I am changing the world.
Some causes you just can’t ignore, and praise God for that.
I'm so proud of you and being part of Megan andEvline's legacy is an honor!
ReplyDeletecouldn't have done it without you mama!!! Love u!
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